Links Continued

Spasmodic Dysphonia/Torticollis

National Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Suite 2430
Chicago, IL 60601-1905
Phone: 312.755.0198
Toll Free: 800.377.DYST
Fax: 312.803.0138
Email: [email protected]
Dedicated to serving the needs of persons affected with dystonia and their families, the Foundation has grown from a small family-based foundation to a member-driven organization of close to 25,000 persons.

National Spasmodic Torticollis Association (NSTA)
9920 Talbert Avenue
Suite 233
Fountain Valley, CA 92708
800.HURTFUL
714.378.7837
Email: [email protected]
The National Spasmodic Torticollis Association (NSTA), a California nonprofit organization, provides support, referrals, and information for patients and family members living with ST. The organization offers a variety of valuable services.

Stroke

American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214.373.6300
Toll Free: 800.AHA.USA.1
Stroke Connection: 800.553.6321
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.

National Institute of Neurological Disorders and Stroke
31 Center Drive MSC 2540
Building 31, Room 8A06
Bethesda, MD 20892-2540
Phone: 301.496.5751
Fax: 301.4002.2186
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

National Stroke Association
96 Inverness Drive East
Suite I
Englewood, CO 80112-5112
Phone: 303.649.9299
Fax: 303.649.1328
Toll Free: 1.800.STROKES or 1.800.787.6537
National health care organization provides site for stroke survivors and their families detailing stroke prevention, treatment, rehabilitation, and research.

Tinnitus

American Tinnitus Association
P.O. Box 5
Portland, OR 97207-0005
Toll Free: 800.634.8978
Email: [email protected]
Education - Advocacy - Research - Support..."To promote relief, prevention, and the eventual cure of tinnitus for the benefit of present and future generations."

Tremor

International Essential Tremor Foundation
7046 W. 105th Street
Overland Park, KS 66212-1803
Phone: 913.341.3880
Fax: 913.341.1296
Email: [email protected]

Trigeminal Neuralgia

Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
Phone: 904.779.0333
Fax: 904.779.7681
Email: [email protected]
TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.

Tourette Syndrome

The Tourette Syndrome Association, Inc.
Phone: 718-224-2999
Email: [email protected]
Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. 

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General Neurological Resources

American Academy of Neurology
1080 Montreal Avenue
St. Paul, MN 55116
Phone: 651.695.1940
Email: [email protected]

Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue
Suite 700

Email: [email protected]
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education.

National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians, and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)

1010 Wayne Avenue
Suite 800
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
301.495.5626 (TT)
Fax: 301.562.2401
One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.

National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: 202.205.8134
TTY: 202.205.9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages. 

ADHD
ALS
Alzheimer's
Aphasia
Ataxia
Autism
Benign Essential Blepharospasm
Brain Injury
Brain Tumor
Cerebral Palsy
Creutzfeldt-Jakob Disease
Dystonia
Epilepsy
Fibromyalgia
Guillain-Barre
Headache/Migraine
Huntington's Disease
Lyme Disease
Multiple Sclerosis
Muscular Dystrophy
Myasthenia Gravis
Neurofibromatosis
Neuropathy
Pain Management
Parkinson's Disease
Progressive Supranuclear Palsy
Restless Leg Syndrome
Sleep Disorders
Spasmodic Dystonia/Torticollis
Stroke
Tinnitus
Tourette Syndrome
Tremor
Trigeminal Neuralgia

General Neurology
General Resources
Clinical Trials

 

 

Attention Deficit/Hyperactivity Disorder
ADD Resources
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

 

ALS
ALS Association

 

Alzheimer's Disease
Alzheimer's Association
Alzheimer's Disease Education and Referral (ADEAR Center)
American Association for Geriatric Psychiatry
American Health Assistance Foundation
Consumer Consortium on Assisted Living
Eldercare Locator

 

Aphasia
National Aphasia Association

 

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Ataxia
National Ataxia Foundation (NFA)

 

Autism
Autism Research Institute
Growing Minds Autism Programs
The Son-Rise Program...The Autism Treatment Center Of America

 

Benign Essential Blepharospasm
Benign Essential Blepharospasm Research Foundation, Inc. (BEBRF)

 

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Brain Injury
Brain Injury Association Inc.
Brain Trauma Foundation

 

Brain Tumor
American Brain Tumor Association (ABTA)
National Brain Tumor Foundation
Children's Brain Tumor Foundation

 

Cerebral Palsy
United Cerebral Palsy

 

Creutzfeldt-Jakob Disease
Creutzfeldt-Jakob Disease Foundation, Inc.

 

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Dystonia
Dystonia Medical Research Foundation (DMRF)

 

Epilepsy
American Epilepsy Society
The Epilepsy Foundation

 

Fibromyalgia
National Fibromyalgia Association

 

Guillain-Barre Syndrome
Guillain-Barre Syndrome Foundation International

 

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Headache/Migraine
American Council for Headache Education (ACHE)
National Headache Foundation
World Headache Alliance

 

Huntington's Disease
Huntington's Disease Society of America

 

Lyme Disease
American Lyme Disease Foundation
Lyme Disease: A Patients Guide

 

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Multiple Sclerosis
National Multiple Sclerosis Society

 

Muscular Dystrophy
Muscular Dystrophy Association

 

Myasthenia Gravis
Myasthenia Gravis Foundation of America (MGF)

 

Neurofibromatosis
National Neurofibromatosis Foundation

 

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Neuropathy
Charcot-Marie-Tooth Association

 

Pain Management
American Chronic Pain Association, Inc. (ACPA)
National Foundation for the Treatment of Pain
Spine Health

 

Parkinson's Disease
American Parkinson Disease Association
The Michael J. Fox Foundation for Parkinson's Research
National Parkinson Foundation, Inc.
Parkinson's Disease Foundation

 

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Progressive Supranuclear Palsy
Society for Progressive Supranuclear Palsy, Inc. (SPSP)

 

Restless Leg Syndrome
Restless Legs Syndrome Foundation

 

Sleep Disorders
American Academy of Sleep Medicine
American Sleep Apnea Association
Center for Narcolepsy
National Sleep Foundation

 

Spasmodic Dystonia/Torticollis
Dystonia Medical Research Foundation
ST Dystonia Inc.
National Spasmodic Torticollis Association (NSTA)

 

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Stroke
American Stroke Association
National Institute of Neurological Disorders and Stroke
National Stroke Association

 

Tinnitus
American Tinnitus Association

 

Tourette Syndrome
Tourette Syndrome Association, Inc.

 

Tremor
International Tremor Foundation
Tremor Action Network

 

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Trigeminal Neuralgia
Trigeminal Neuralgia Association (TNA)

 

General Neurological Resources
Aging Parents and Elder Care
American Academy of Neurology
Dana Alliance (Charles A. Dana Fund)
Christopher and Dana Reeve Resource Center 
Family Caregiver Alliance
National Institute of Neurological Disorders and Stroke
National Institute on Disability and Rehabilitation Research (NIDRR)
The Brain Matters
The National Rehabilitation Information Center(NARIC)
neurologychannel

 

General Resources
Safe Medication

 

Clinical Trials