Spasmodic Dysphonia/Torticollis
National Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Suite 2430
Chicago, IL 60601-1905
Phone:
312.755.0198
Toll Free:
800.377.DYST
Fax: 312.803.0138
Email:
[email protected]
Dedicated to serving the needs of persons affected with dystonia and their families, the Foundation has grown from a small family-based foundation to a member-driven organization of close to 25,000 persons.
National Spasmodic Torticollis Association (NSTA)
9920 Talbert Avenue
Suite 233
Fountain Valley, CA 92708
800.HURTFUL
714.378.7837
Email:
[email protected]
The National Spasmodic Torticollis Association (NSTA), a California nonprofit organization, provides support, referrals, and information for patients and family members living with ST. The organization offers a variety of valuable services.
Stroke
American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone:
214.373.6300
Toll Free:
800.AHA.USA.1
Stroke Connection:
800.553.6321
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.
National Institute of Neurological Disorders and Stroke
31 Center Drive MSC 2540
Building 31, Room 8A06
Bethesda, MD 20892-2540
Phone:
301.496.5751
Fax: 301.4002.2186
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.
National Stroke Association
96 Inverness Drive East
Suite I
Englewood, CO 80112-5112
Phone:
303.649.9299
Fax: 303.649.1328
Toll Free:
1.800.STROKES or 1.800.787.6537
National health care organization provides site for stroke survivors and their families detailing stroke prevention, treatment, rehabilitation, and research.
Tinnitus
American Tinnitus Association
P.O. Box 5
Portland, OR 97207-0005
Toll Free:
800.634.8978
Email:
[email protected]
Education - Advocacy - Research - Support..."To promote relief, prevention, and the eventual cure of tinnitus for the benefit of present and future generations."
Tremor
International Essential Tremor Foundation
7046 W. 105th Street
Overland Park, KS 66212-1803
Phone:
913.341.3880
Fax: 913.341.1296
Email:
[email protected]
Trigeminal Neuralgia
Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
Phone:
904.779.0333
Fax: 904.779.7681
Email:
[email protected]
TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.
Tourette Syndrome
The Tourette Syndrome Association, Inc.
Phone:
718-224-2999
Email:
[email protected]
Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder.
General Neurological Resources
American Academy of Neurology
1080 Montreal Avenue
St. Paul, MN 55116
Phone:
651.695.1940
Email:
[email protected]
Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue
Suite 700
Email:
[email protected]
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education.
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians, and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.
The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue
Suite 800
Silver Spring, MD 20910
Toll Free:
800.346.2742
(V)
Phone:
301.562.2400
(V)
301.495.5626
(TT)
Fax: 301.562.2401
One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.
National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone:
202.205.8134
TTY:
202.205.9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages.
- Attention Deficit/Hyperactivity Disorder
- ADD Resources
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Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
- ALS
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ALS Association
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- Alzheimer's Association
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- American Association for Geriatric Psychiatry
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Eldercare Locator
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National Aphasia Association
[ back to top ] - Ataxia
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National Ataxia Foundation (NFA)
- Autism
- Autism Research Institute
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The Son-Rise Program...The Autism Treatment Center Of America
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Benign Essential Blepharospasm Research Foundation, Inc. (BEBRF)
[ back to top ] - Brain Injury
- Brain Injury Association Inc.
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Brain Trauma Foundation
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- American Brain Tumor Association (ABTA)
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United Cerebral Palsy
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Creutzfeldt-Jakob Disease Foundation, Inc.
[ back to top ] - Dystonia
- Dystonia Medical Research Foundation (DMRF)
- Epilepsy
- American Epilepsy Society
- The Epilepsy Foundation
- Fibromyalgia
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National Fibromyalgia Association
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Guillain-Barre Syndrome Foundation International
[ back to top ] - Headache/Migraine
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Huntington's Disease Society of America
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- American Lyme Disease Foundation
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Lyme Disease: A Patients Guide
[ back to top ] - Multiple Sclerosis
- National Multiple Sclerosis Society
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Muscular Dystrophy Association
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Myasthenia Gravis Foundation of America (MGF)
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National Neurofibromatosis Foundation
[ back to top ] - Neuropathy
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Charcot-Marie-Tooth Association
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- American Chronic Pain Association, Inc. (ACPA)
- National Foundation for the Treatment of Pain
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Spine Health
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- American Parkinson Disease Association
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Parkinson's Disease Foundation
[ back to top ] - Progressive Supranuclear Palsy
- Society for Progressive Supranuclear Palsy, Inc. (SPSP)
- Restless Leg Syndrome
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Restless Legs Syndrome Foundation
- Sleep Disorders
- American Academy of Sleep Medicine
- American Sleep Apnea Association
- Center for Narcolepsy
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National Sleep Foundation
- Spasmodic Dystonia/Torticollis
- Dystonia Medical Research Foundation
- ST Dystonia Inc.
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National Spasmodic Torticollis Association (NSTA)
[ back to top ] - Stroke
- American Stroke Association
- National Institute of Neurological Disorders and Stroke
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National Stroke Association
- Tinnitus
- American Tinnitus Association
- Tourette Syndrome
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Tourette Syndrome Association, Inc.
- Tremor
- International Tremor Foundation
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Tremor Action Network
[ back to top ] - Trigeminal Neuralgia
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Trigeminal Neuralgia Association (TNA)
- General Neurological Resources
- Aging Parents and Elder Care
- American Academy of Neurology
- Dana Alliance (Charles A. Dana Fund)
- Christopher and Dana Reeve Resource Center
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neurologychannel
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Safe Medication
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