Lyme Disease

American Lyme Disease Foundation
Mill Pond Offices
293 Route 100
Somers, NY 10589
Tel: 914.277.6970
Fax: 914.277.6974
Email: Inquire@aldf.com

Lyme Disease Foundation, Inc.
One Financial Plaza 18th Floor
Hartford, CT 06103
Tel: 860.525.2000
Fax: 860.525.TICK
24-Hour Hotline: 800.886.LYME
Email: lymefnd@aol.com

Lyme Disease: A Patients Guide, American College of Physicians American Society of Internal Medicine

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Multiple Sclerosis

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
Email: info@caregiver.org
Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and other disorders and long-term care concerns. Their site has wonderful features for families, caregivers, professionals, policy makers, and the media.

Multiple Sclerosis Association of America (MSAA)
National Headquarters
706 Haddonfield Road
Cherry Hill, NJ 08002
Toll Free: 1.800.LEARN.MS
Phone: 609.488.4500
The MSAA offers an educational video for newly diagnosed individuals.

National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Fax: 212.986.7981
Phone: 212.476.0426
Toll Free: 800.344.4867 (FIGHT MS)
Email: info@nmss.org
The National Multiple Sclerosis Society is dedicated to ending the devastating effects of Multiple Sclerosis (MS). Acquire news updates, information about the organization, local resources, and MS links.

Muscular Dystrophy

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718
Toll Free: 800.572.1717
The Muscular Dystrophy Association is the source for news and information about neuromuscular diseases, MDA research and services for adults and children with neuromuscular diseases and their families.

Myasthenia Gravis

Myasthenia Gravis Foundation of America (MGFA)
1821 University Ave W
Suite S256
St. Paul, MN 55104-2897
Phone: 800.541.5454 or 651.917.6256
Fax: 651.917.1835
Email: mgfa@myasthenia.org
This national volunteer health agency seeks to find a cure for myasthenia gravis and related disorders of the neuromuscular junction and to help people affected by them. Their site provides news, research updates, patient-service information, and links.

Neurofibromatosis

Neurofibromatosis, Inc.
8855 Annapolis Road
Suite 110
Lanham, MD 20706-2924
Toll Free: 800.942.6825
Phone: 301.577.8984
Fax: 301.577.0016
Email: nfincl@aol.com
NF, Inc. is an organization made up of independent state and regional chapters, providing support and services to NF families.

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Neuropathy

Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
Phone: 610.499.9264
610.499.9265
Toll Free: 1.800.606.CMTA (2682)
Fax: 610.499.9267
Email: CMTAssoc@aol.com
The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research, and ultimately the treatment and cure of CMT.

The Neuropathy Association
60 E. 42nd Street
Suite 942
New York, NY 10165
Phone: 212.692.0662
Email: info@neuropathy.org
The Neuropathy Association is a public, nonprofit organization which was established by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves.

Obsessive-Compulsive Disorder

Obsessive-Compulsive Foundation (OCF)
337 Notch Hill Road
North Branford, CT 06471
Phone: 203.315.2190
Fax: 203.315.2196
Email: info@ocfoundation.org
OCF funds research, conducts annual membership conferences, publishes a bi-monthly newsletters, provides a free inquiry packet with information on treatment providers, support groups, and other materials.

Pain Management

National Foundation for the Treatment of Pain
1330 Skyline Drive
Suite 21
Monterey, CA 93940
Phone: 831.655.8812
Fax: 831.655.2823
The National Foundation for the Treatment of Pain is a not-for-profit organization dedicated to providing support for patients who are suffering from intractable pain, their families, friends and the physicians who treat them.

American Chronic Pain Association, Inc. (ACPA)
P.O. Box 850
Rocklin, CA 95677
Phone: 916.632.0922
Fax: 916.632.3208
Email: ACPA@pacbell.net
ACPA Mission Statement:
* To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
* To raise awareness about issues of living with chronic pain among the health care community, policy makers, and the public at large.

Parkinson's Disease

American Parkinson Disease Association
1250 Hylan Boulevard
Suite 4B
Staten Island, NY 10305
Toll Free: 800.223.2732
Phone: 718.981.8001
Email: info@apdaparkinson.com

National Parkinson Foundation, Inc.
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Toll Free: 800.327.4545
Fax: 305.548.4403
Email: mailbox@npf.med.miami.edu
The organization supports research; conducts clinical trials; and provides physical, occupational, speech, and neuropsychological therapies. Learn about Parkinson's disease-related news and events. The online library also holds publications and articles.

Parkinson's Disease Foundation
710 West 168th Street
New York, NY 10032-9982
Toll Free: 800.457.6676
Phone: 212.923.4700
Email: info@pdf.org
Educational Office (312)733-1893
The Foundation provides information about Parkinson's disease itself as well as related organizations, research centers, and events. You can also read the latest Parkinson's news or join the online email list.

Parkinson's Action Network
840 Third Street
Santa Rosa, CA 95404
Toll Free: 800.850.4726
Phone: 707.544.1994
Fax: 707.544.2363
Email: info@parkinsonsaction.org
The Parkinson's Action Network was founded in 1991 with a mission to provide a voice for the Parkinson's community. Since that time, the Network's central objective continues to be to promote a level of research support sufficient to produce effective treatments and a cure.

Progressive Supranuclear Palsy

Society for Progressive Supranuclear Palsy, Inc. (SPSP)
Suite 515, Woodholme Medical Building
1838 Greene Tree Road
Baltimore, MD 21208
800.457.4777
Fax: 410.486.4283
Email: spsp@erols.com
The goal of this website is to bring current information on progressive supranuclear palsy (PSP) to persons with PSP, their families, and their caregivers.

Restless Leg Syndrome

Restless Legs Syndrome Foundation
4410 19th Street NW
Suite 201
Rochester, MN 55901-6635
Phone: 507.287.6465
Email: RLSFoundation@rls.org
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) agency that provides information about RLS; helps develop support groups; supports research to find better treatments and, eventually, a definitive cure; educates physicians and patients about RLS; and publishes a quarterly newsletter known as NightWalkers.

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Sleep Disorders

American Academy of Sleep Medicine
6301 Bandel Road NW
Suite 101
Rochester, MN 55901
Phone: 507.287.6006
Fax: 507.287.6008
Email: info@aasmnet.org

American Sleep Apnea Association
1424 K Street NW
Suite 302
Washington, DC 20005
Phone: 202.293.3650
Fax: 202.293.3656
Email: asaa@sleepapnea.org
The American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, the ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.

Center for Narcolepsy
Sleep Disorders Clinic
Stanford University Medical Center
401 Quarry Road
Stanford, CA 94305-5730
Phone: 650.723.6601
The Center for Narcolepsy is part of the Department of Psychiatry and Behavioral Sciences and has published more than 100 articles on narcolepsy. It is the world leader in the search for the cause of narcolepsy. Several hundred patients with the disorder are currently treated at the Center or participate in various research protocols. A colony of Dobermans affected with the disorder is also bred and maintained to study narcolepsy and search for the canine narcolepsy gene (see Research).

National Sleep Foundation
1522 K Street, NW
Suite 500
Washington, DC 20005
Fax: 202.347.3472
Email: nsf@sleepfoundation.org
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy.

SleepChannel
SleepChannel is developed and monitored by leading sleep specialists. You can always be assured of finding the most up-to-date, medically accurate information available on the web.
SleepChannelForum
In our forums, your forum questions are answered by board certified physicians, and you can respond to the concerns of other browsers.
Resources
Connect with local and national organizations to find out about ongoing efforts to raise awareness, enhance quality of life, and advocate for prevention, treatment, and cures for a variety of sleep-related conditions.

Spasmodic Dysphonia/Torticollis

National Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Suite 2430
Chicago, IL 60601-1905
Phone: 312.755.0198
Toll Free: 800.377.DYST
Fax: 312.803.0138
Email: dystonia@dystonia-foundation. org
Dedicated to serving the needs of persons affected with dystonia and their families, the Foundation has grown from a small family-based foundation to a member-driven organization of close to 25,000 persons.

National Spasmodic Torticollis Association (NSTA)
9920 Talbert Avenue
Suitee 233
Fountain Valley, CA 92708
800.HURTFUL
714.378.7837
Email: nstamail@aol.com
The National Spasmodic Torticollis Association (NSTA), a California nonprofit organization, provides support, referrals, and information for patients and family members living with ST. The organization offers a variety of valuable services.

Stroke

American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214.373.6300
Toll Free: 800.AHA.USA.1
Stroke Connection: 800.553.6321
Dedicated to researching the prevention, cures and treatments of Alzheimer's disease nationwide.

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
31 Center Drive MSC 2540
Building 31, Room 8A06
Bethesda, MD 20892-2540
Phone: 301.496.5751
Fax: 301.4002.2186
Patients, clinicians and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

National Stroke Association
96 Inverness Drive East
Suite I
Englewood, CO 80112-5112
Phone: 303.649.9299
Fax: 303.649.1328
Toll Free: 1.800.STROKES or 1.800.787.6537
National health care organization provides site for stroke survivors and their families detailing stroke prevention, treatment, rehabilitation, and research.

Tinnitus

American Tinnitus Association
P.O. Box 5
Portland, OR 97207-0005
Toll Free: 800.634.8978
Email: tinnitus@ata.org
Education - Advocacy - Research - Support..."To promote relief, prevention, and the eventual cure of tinnitus for the benefit of present and future generations."

Tremor

International Essential Tremor Foundation
7046 W. 105th Street
Overland Park, KS 66212-1803
Phone: 913.341.3880
Fax: 913.341.1296
Email: IntTremorFnd@worldnet.att.net

Trigeminal Neuralgia

Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
Phone: 904.779.0333
Fax: 904.779.7681
Email: Tnainfo@aol.com
TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient.

Tourette Syndrome

The Tourette Syndrome Association, Inc.
Phone: 718-224-2999
Email: ts@tsa-usa.org
Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder.

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General Neurological Resources

American Academy of Neurology
1080 Montreal Avenue
St. Paul, MN 55116
Phone: 651.695.1940
Email: wen@ann.com

Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue
Suite 700
New York, NY 10151
Email: dabiinfo@dana.org
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education.

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians, and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies.

The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue
Suite 800
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
301.495.5626 (TT)
Fax: 301.562.2401
One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.

National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: 202.205.8134
TTY: 202.205.9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages.

Clinical Trials

The NeurologyChannel is pleased to present a cooperative arrangement with Centerwatch.com. Our relationship is consistent with our mission to provide our browsers with the most comprehensive community of neurological resources. You are one click away from one of the greatest online resources for clinical trials. You can use their website to find a variety of information related to clinical trials. Their website is designed to be a resource both for patients interested in participating in clinical trials and for research professionals. Be sure to bookmark their site and watch as this section and the NeurologyChannel relationship with Centerwatch.com grows!

Attention Deficit/Hyperactivity Disorder

ADD Resources

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

ALS

ALS Association

Alzheimer's Disease

Alzheimer's Association

Alzheimer's Disease Education and Referral (ADEAR Center)

American Association for Geriatric Psychiatry

American Health Assistance Foundation

Consumer Consortium on Assisted Living

Eldercare Locator

Aphasia

National Aphasia Association

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Ataxia

National Ataxia Foundation (NFA)

Autism

Autism Research Institute

Growing Minds Autism Programs

The Son-Rise Program...The Autism Treatment Center Of America

Benign Essential Blepharospasm

Benign Essential Blepharospasm Research Foundation, Inc. (BEBRF)

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Brain Injury

Brain Injury Association Inc.

Brain Trauma Foundation

Brain Tumor

American Brain Tumor Association (ABTA)

National Brain Tumor Foundation

Children's Brain Tumor Foundation

Cerebral Palsy

United Cerebral Palsy

Creutzfeldt-Jakob Disease

Creutzfeldt-Jakob Disease Foundation, Inc.

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Dystonia

Dystonia Medical Research Foundation (DMRF)

WE MOVE

Epilepsy

American Epilepsy Society

The Epilepsy Foundation

Fibromyalgia

National Fibromyalgia Association

Guillain-Barre Syndrome

Guillain-Barre Syndrome Foundation International

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Headache/Migraine

American Council for Headache Education (ACHE)

National Headache Foundation

World Headache Alliance

Hemifacial Spasm

Hemifacial Spasm Association

Huntington's Disease

Caring For People with Huntington's Disease

Huntington's Disease Society of America

Lyme Disease

American Lyme Disease Foundation

Lyme Disease: A Patients Guide

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Multiple Sclerosis

Multiple Sclerosis Association of America (MSAA)

National Multiple Sclerosis Society

Muscular Dystrophy

Muscular Dystrophy Association

Myasthenia Gravis

Myasthenia Gravis Foundation of America (MGF)

Neurofibromatosis

Neurofibromatosis, Inc.

National Neurofibromatosis Foundation

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Neuropathy

Charcot-Marie-Tooth Association

The Neuropathy Association

Pain Management

American Chronic Pain Association, Inc. (ACPA)

National Foundation for the Treatment of Pain

Spine Health

Parkinson's Disease

American Parkinson Disease Association

The Michael J. Fox Foundation for Parkinson's Research

National Parkinson Foundation, Inc.

Parkinson's Disease Foundation

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Progressive Supranuclear Palsy

Society for Progressive Supranuclear Palsy, Inc. (SPSP)

Restless Leg Syndrome

Restless Legs Syndrome Foundation

Sleep Disorders

American Academy of Sleep Medicine

American Sleep Apnea Association

Center for Narcolepsy

National Sleep Foundation

sleepchannel

Spasmodic Dystonia/Torticollis

Dystonia Medical Research Foundation

ST Dystonia Inc.

National Spasmodic Torticollis Association (NSTA)

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Stroke

American Stroke Association

National Institute of Neurological Disorders and Stroke

National Stroke Association

Tinnitus

American Tinnitus Association

Tourette Syndrome

Tourette Syndrome Association, Inc.

Tremor

International Tremor Foundation

Tremor Action Network

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Trigeminal Neuralgia

Trigeminal Neuralgia Association (TNA)

General Neurological Resources

Aging Parents and Elder Care

American Academy of Neurology

Dana Alliance (Charles A. Dana Fund)

Christopher and Dana Reeve Resource Center

Family Caregiver Alliance

National Institute of Neurological Disorders and Stroke

National Institute on Disability and Rehabilitation Research (NIDRR)

The Brain Matters

The National Rehabilitation Information Center(NARIC)

neurologychannel

General Resources

Safe Medication

Clinical Trials